University of Leeds – INSCHOOL project privacy policy

University of Leeds – INSCHOOL project privacy policy

Created 11/02/2022

Our contact details

Name: Dr Simon Pini

Address: Division of Psychological and Social Medicine, Leeds Institute of Health Sciences, Worsley Building, University of Leeds

E-mail: s.pini@leeds.ac.uk

 

Who is monitoring this project?

This project is sponsored by the University of Leeds and overseen by the National Institute for Health Research (NIHR). A research ethics committee have evaluated and approved the project.

 

How will we use information about you? 

Under GDPR article 6(1), the lawful basis for the processing of data in this research is justified under section (e) – public task in fulfilling the university’s public task of conducting research.

We will need to use information from you for this research project. The only information we will gather from you will be what you choose to tell us. This will include details of your name, date of birth, contact details, where you go to school, and what kind of illness you have. It will also include whatever you choose to tell us about your school experiences. People will use this information to do the research or to check your records to make sure that the research is being done properly.

When we talk to you about your school experiences, we will record what you say and this will be sent to a transcription company, who will write it down for us, removing any personal information as they do so. The transcription company will agree not to share any of your information.

People who do not need to know who you are will not be able to see your name or contact details. Your data will have a code number instead. We will keep all information about you safe and secure.

Once we have finished the study, we will keep some of the data so we can check the results. We will write our reports in a way that no-one can work out that you took part in the study.

We would like to keep different parts of your data for different reasons.

  • We would like to keep your personal contact details (name, email, telephone) for the duration of the research programme (up to 5 years). This will mean we can contact you to invite you to other parts of the project you might be interested in taking part in.
  • We would like to keep the audio recordings of the interviews and focus groups for the duration of this particular project (up to 2 years).This means we can refer back to them if we need to, but they will be deleted when this project is over.
  • When this project is completed we will take out any identifiable information from the interview and focus group transcripts, so nobody can tell who you are. These anonymised transcripts will then be stored safely to help future research (up to 10 years).

 

Are there any limits to my information being private?

If you say anything which makes us concerned for your safety, or the safety of someone else, then we would have to notify the appropriate individuals. This is the only case in which your confidentiality may be broken.

 

What are your choices about how your information is used?

  • You can stop being part of the study at any time, without giving a reason, but we will keep information about you that we already have.
  • We need to manage your records in specific ways for the research to be reliable. This means that we won’t be able to let you see or change the data we hold about you.
  • If you agree to take part in this study, you will have the option to take part in future research using your data saved from this study. You can tell us if you are happy with this in the consent form.

 

Where can you find out more about how your information is used?

You can find out more about how we use your information

 

Your data protection rights

Under data protection law, you have rights including:

Your right of access – You have the right to ask us for copies of your personal information.

Your right to rectification – You have the right to ask us to rectify personal information you think is inaccurate. You also have the right to ask us to complete information you think is incomplete.

Your right to erasure – You have the right to ask us to erase your personal information in certain circumstances.

Your right to restriction of processing – You have the right to ask us to restrict the processing of your personal information in certain circumstances.

Your right to object to processing – You have the the right to object to the processing of your personal information in certain circumstances.

Your right to data portability – You have the right to ask that we transfer the personal information you gave us to another organisation, or to you, in certain circumstances.

You are not required to pay any charge for exercising your rights. If you make a request, we have one month to respond to you.

If you wish to make a request, or for any other queries related to the INSCHOOL project, please contact:

Name: Dr Simon Pini

Address: Division of Psychological and Social Medicine, Leeds Institute of Health Sciences, Worsley Building, University of Leeds

E-mail: s.pini@leeds.ac.uk

 

How to complain

If you have any general questions about how your personal information is used by the University, or wish to exercise any of your rights, please consult the University’s data protection webpages.

If you have any concerns about our use of your personal information, you can make a complaint to us at dpo@leeds.ac.uk or directly with the University’s Data Protection Officer Alice Temple at A.C.Temple@leeds.ac.uk

You can also complain to the ICO if you are unhappy with how we have used your data.

The ICO’s address:

Information Commissioner’s Office

Wycliffe House

Water Lane

Wilmslow

Cheshire

SK9 5AF

 

Helpline number: 0303 123 1113

ICO website: https://www.ico.org.uk